Dr Miller confirmed that my colonoscopy results were fine.
The CAT scan confirmed the mass on my left side is on the bowel. There is another on the right side, higher up. My estrogen and FSH levels are "normal" for someone who actually has ovaries. For me, they are all wrong. He pulled my pathology from Sinai and his operative notes. Uterus, tubes and ovaries were removed intact. His notes indicate that he removed an extra 2 cm beyond each structure just to be safe.
So what does that mean?
He suggested that when he detached the ovary from the ovarian artery, the artery may have retracted and took some endometriosis or ovarian tissue with it.
He is proposing Lupron for 3 months to dry up the worst of the estrogen. Then surgery. The 3cm spot on my left side is on the colon so there’s always a possibility of needing to remove a portion. Surgery would be an open laparotomy down my left side so that there is easiest access to the colon. He believes that this is recurring endometriosis or an ovarian remnant.
I asked about delaying all of this a few months. He said that it can keep getting worse and could involve the bowel more. My questions for him are, 1. if I do the Lupron and it dries stuff up, is that stuff gone or just gone enough that he can’t see it and it could grow back. 2. after the Lupron, can he just do a laparoscopic surgery to see how bad it actually looks in there before deciding if I need the big one. A very unlikely possibility to rule out is that there is a type of ovarian cancer that makes its own estrogen. He is hopeful it’s not that, but he’s a cancer doctor so that’s always on his mind. My third question, I wonder if he can rule this out sooner without surgery?
Now I wait for the first lupron shot! I never thought that I would be going down this road again. It has been 10 years since I was on lupron and 10 years since my major surgery and colon resection!
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